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Lookup NU author(s): Dr Claire Wood
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© 2023 Elsevier Ltd. Paediatric health research is fraught with both ethical and practical challenges that can hinder the successful completion of research studies. Listening to, and acting on, the voices of children and young people in the design and delivery of paediatric health research (otherwise known as Patient and Public Involvement) is one way to overcome such challenges. This paper describes our experiences of working directly with children and young people in various health research initiatives. We recount our journey of involving children and young people as partners and give examples to demonstrate the unique knowledge and insights gained in the production of high-quality research. This short review showcases the many benefits gained if meaningful involvement occurs, including greater understanding of children and young people's perspectives and the impact this has on research studies. We provide various practical resources for researchers on how to meaningfully involve children and young people as partners, how to develop age-appropriate information and guidance to support the ethical review process.
Author(s): Preston J, Lappin E, Ainsworth J, Wood CL, Dimitri P
Publication type: Review
Publication status: Published
Journal: Paediatrics and Child Health
Year: 2023
Pages: Epub ahead of print
Online publication date: 07/11/2023
Acceptance date: 02/04/2018
ISSN (print): 1751-7222
ISSN (electronic): 1878-206X
Publisher: Churchill Livingstone
URL: https://doi.org/10.1016/j.paed.2023.10.003
DOI: 10.1016/j.paed.2023.10.003
