The role of priming networks in diagnostic disclosure in dementia

Bamford, C;, Bond, J;, Lamont, S;, Eccles, M;, May, C

doi:10.1093/geront/42.Special_Issue_I.1

The role of priming networks in diagnostic disclosure in dementia

Lookup NU author(s): Sharon Lamont, Claire Bamford ORCiD, Professor Carl May, Professor John Bond, Professor Martin Eccles

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Abstract

Existing research suggests that disclosing a diagnosis ofdementia is difficult and that clinicians approach disclosure with varying degrees of reluctance and anxiety. Using qualitative in-depth interviews, this study explores diagnostic disclosure from the perspectives of people with dementia and their carers. Initial analysis has highlighted the importance of priming for diagnosis and disclosure. The priming process begins with first recognition of the disease process and the number of people involved in the priming network increases as concerns are shared with family members and professionals. The priming process involves explicit and implicit preparation of the person with suspected dementia to a point where formal disclosure is almost a formality. As a consequence, many people with dementia are not totally surprised by their diagnosis. This study has important implications for training clinicians in disclosing a diagnosis of dementia.