Disparate routes through support: negotiating the sites, stages and support of informal dementia care

  1. Lookup NU author(s)
  2. Valerie Egdell
  3. Professor John Bond
  4. Dr Katie Brittain
  5. Dr Helen Jarvis
Author(s)Egdell V, Bond J, Brittain K, Jarvis H
Publication type Article
JournalHealth & Place
ISSN (print)1353-8292
ISSN (electronic)1873-2054
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Worldwide people with dementia are usually cared for at home by informal carers who may themselves have poor health and/or live in social situations which intensify their needs. The scale of these needs continues to be underappreciated and they are exacerbated by the limited social, cultural and emotional resources that carers can draw upon. This paper looks at the disparities in support, and the complex negotiations made by carers, as they reconcile the everyday realities of informal care in the home. Appreciation of these issues is essential in understanding carers’ coping strategies in an ageing population.
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