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Lookup NU author(s): Dr Morven BrownORCiD, Professor Roderick Skinner, Professor Simon BaileyORCiD
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BackgroundMedulloblastoma is the most common malignant brain tumour in children and is treated with a combination of surgery, radiotherapy and chemotherapy. These children frequently experience long-term cognitive, social and physical sequelae, which significantly affect school reintegration.AimThis study aimed to explore school-return experiences to create a more structured school reintegration protocol for children postmedulloblastoma.MethodsA cohort of nine patients who had completed treatment and for whom full neuropsychometric data were available was included in the study (median time since diagnosis 8 years). Data were collected using qualitative parental questionnaires, semistructured interviews with teachers (n = 12) and healthcare professionals (HCPs) (n = 6) involved in their school reintegration. Thematic analysis was employed. A focus group with five HCPs was then used for data validation.ResultsThis study uncovered the following four main subjects: (1) Information sharing; (2) education and empowerment (of educational professionals (EP) and parents); (3) communication between parents, HCPs and EPs; and (4) long-term difficulties.DiscussionImplementation of a standardised protocol delivered within the structure of a school passport document would aid uniform follow-up. The proposed multistage protocol includes early communication and reintegration planning followed by meetings at school re-entry. Follow-up meetings are suggested to reduce information loss and reassess the child's needs. Hospital support at school transitions, inclusion of school data in long-term clinical follow-up and long-term rehabilitation are also recommended. Each stage would be supported by school passport documentation and would facilitate school and parental empowerment, paramount to the long-term sustainability of successful schooling. (C) 2016 Wiley Periodicals, Inc.
Author(s): Tresman R, Brown M, Fraser F, Skinner R, Bailey S
Publication type: Article
Publication status: Published
Journal: Pediatric Blood & Cancer
Year: 2016
Volume: 63
Issue: 9
Pages: 1636-1642
Print publication date: 01/09/2016
Online publication date: 19/05/2016
Acceptance date: 02/04/2016
Date deposited: 31/10/2016
ISSN (print): 1545-5009
ISSN (electronic): 1545-5017
Publisher: Wiley-Blackwell
URL: http://dx.doi.org/10.1002/pbc.26071
DOI: 10.1002/pbc.26071
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