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Lookup NU author(s): Professor Anthony De SoyzaORCiD
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Bronchiectasis is a disease of renewed interest in light of an increase in prevalence and increasing burden on international healthcare systems. There are no licensed therapies, and large gaps in knowledge in terms of epidemiology, pathophysiology and therapy. The European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC) is a European Respiratory Society (ERS) Clinical Research Collaboration, funded by ERS to promote high-quality research in bronchiectasis. The objective of this consensus statement was to define research priorities in bronchiectasis. From 2014 to 2015, EMBARC used a modified Delphi process among European bronchiectasis experts to reach a consensus on 55 key research priorities in this field. During the same period, the European Lung Foundation collected 711 questionnaires from adult patients with bronchiectasis and their carers from 22 European countries reporting important research priorities from their perspective. This consensus statement reports recommendations for bronchiectasis research after integrating both physicians and patients priorities, as well as those uniquely identified by the two groups. Priorities identified in this consensus statement provide the clearest possible roadmap towards improving our understanding of the disease and the quality of care for patients with bronchiectasis.
Author(s): Aliberti S, Masefield S, Polverino E, De Soyza A, Loebinger MR, Menendez R, Ringshausen FC, Vendrell M, Powell P, Chalmers JD, EMBARC Study Group
Publication type: Article
Publication status: Published
Journal: European Respiratory Journal
Year: 2016
Volume: 48
Issue: 3
Pages: 632-647
Print publication date: 01/09/2016
Acceptance date: 02/03/2016
ISSN (print): 0903-1936
ISSN (electronic): 1399-3003
Publisher: European Respiratory Journal
URL: http://dx.doi.org/10.1183/13993003.01888-2015
DOI: 10.1183/13993003.01888-2015
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