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Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services

Lookup NU author(s): Jenni Hislop, Dr Helen Mason, Professor Jeremy Parr, Professor Luke Vale, Emeritus Professor Allan Colver

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This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND).


Abstract

PurposeThis study sought to identify and describe the views of young people with chronic conditions about the transition from paediatric to adult services. MethodsQ-methodology was used to identify young people’s views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from “strongly disagree” to “strongly agree”. Factor analysis was used to identify shared points of view (patterns of similarity between individual’s Q sorts). ResultsFour distinct views on transition were identified from young people: 1) ‘A laid-back view of transition’, 2) ‘Anxiety about transition’, 3) ‘Wanting independence and autonomy during transition’, 4) ‘Valuing social interaction with family, peers and professionals to assist transition’. ConclusionsSuccessful transition is likely to be influenced by how young people view the process. Discussing and understanding young people’s views and preferences about transition should help clinicians and young people develop personalised planning for transition as a whole, and more specifically the point of transfer, leading to effective and efficient engagement with adult care.


Publication metadata

Author(s): Hislop J, Mason H, Parr JR, Vale L, Colver A

Publication type: Article

Publication status: Published

Journal: Journal of Adolescent Health

Year: 2016

Volume: 59

Issue: 3

Pages: 345-353

Print publication date: 01/09/2016

Online publication date: 08/06/2016

Acceptance date: 18/04/2016

ISSN (print): 1054-139X

ISSN (electronic): 1879-1972

Publisher: Elsevier Inc.

URL: http://dx.doi.org/10.1016/j.jadohealth.2016.04.004

DOI: 10.1016/j.jadohealth.2016.04.004


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