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Coping with cognitive impairment and Parkinson’s disease: perspectives from patients and carers

Lookup NU author(s): Dr Rachael Lawson, Daniel Collerton, Dr John-Paul Taylor, Professor David Burn, Dr Katie Brittain

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This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).


Abstract

Cognitive impairment is common in Parkinson’s disease (PD). However, the psychosocial impact of living and coping with PD and cognitive impairment in people with PD and their carers have not been explored. This paper draws on a qualitative study that explores the subjective impact of cognitive impairment on people with PD and their carers. Thirty-six one-to-one interviews were completed; people with PD were from three groups: normal cognition, mild cognitive impairment and dementia. Data collection and analysis were iterative and verbatim transcripts were analysed using thematic analysis. Themes were interpreted in consultation with coping and adaptation theory. The analysis revealed four main themes: threats to identity and role, pre-death grief and feelings of loss in carers, success and challenges to coping in people with PD, and problem focused coping and finding meaning in caring. Our data highlights how cognitive impairment can threaten an individual’s self-perception and their perceived role; the ostensible effects depended on the impact individual’s perceived cognitive impairment on their daily lives. For carers, cognitive impairment had a greater emotional impact compared to the physical symptoms of PD. The discussion that developed around protective factors provides possible opportunities for future interventions, such as psychological therapies to improve successful adjustment.


Publication metadata

Author(s): Lawson RA, Collerton D, Taylor JP, Burn DJ, Brittain KR

Publication type: Article

Publication status: Published

Journal: Parkinson's Disease

Year: 2018

Online publication date: 08/04/2018

Acceptance date: 18/01/2018

ISSN (print): 2090-8083

ISSN (electronic): 2042-0080

Publisher: Hindawi

URL: https://doi.org/10.1155/2018/1362053

DOI: 10.1155/2018/1362053


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