Lookup NU author(s): Dr Jane Wilcockson,
Dr Louise Robinson,
Dr Lynne Corner
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Copyright © Cambridge University Press 2016 The active management of the experience of living with dementia appears to improve quality of life despite the lack of disease modification. However, research to date has been largely of modest scale and explanatory factors for improvements have been under-conceptualised. Thus, although promulgated through national strategies, the evidence base is relatively weak. This paper reports on a nation-wide study of the influence of the National Dementia Strategy for England in relation to Dementia Adviser and Peer Support Network services in 40 demonstration sites. The research aimed to identify ways in which the services contribute to the wellbeing and resilience of people with dementia and care partners. A mixed-methods research design collected data through: activity and outcome monitoring; organisational surveys; in-depth case studies, including qualitative interviews with people with dementia (N = 47) and care partners (N = 54), wellbeing and quality of life measures, and interviews with staff and other stakeholders (N = 82). Three themes are explored: addressing individual and community needs; promoting independence, control and choice; and getting a life back. Services promoted independence, control and choice, and consequently enabled people to re-narrate their lives as purposeful within their communities. Ways in which these are achieved resemble the public health model of lay health advisor and this research adds to the imperative to approach dementia as a key public health concern.
Author(s): Clarke CL, Keyes SE, Wilkinson H, Alexjuk EJ, Wilcockson J, Robinson L, Reynolds J, McClelland S, Hodgson P, Corner L, Cattan M
Publication type: Article
Publication status: Published
Journal: Ageing and Society
Print publication date: 01/02/2018
Online publication date: 08/11/2016
Acceptance date: 22/08/2016
ISSN (print): 0144-686X
ISSN (electronic): 1469-1779
Publisher: Cambridge University Press
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