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‘We’re like a gang, we stick together’: experiences of ventricular assist device communities

Lookup NU author(s): Dr Holly Standing, Professor Catherine Exley, Dr Guy MacGowan, Dr Tim Rapley

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This is the authors' accepted manuscript of an article that has been published in its final definitive form by SAGE Publications Inc., 2018.

For re-use rights please refer to the publisher's terms and conditions.


Abstract

© 2018, The European Society of Cardiology 2018. Background: Ventricular assist devices (VADs) are a relatively new development in the management of advanced heart failure. In the UK, VAD recipients comprise a unique group of less than 200 patients. This is the first paper to explore the experience of VAD communities, the extent to which communities are developed around the device, and how these influence the experience of living with the VAD. Methods: Qualitative interviews were conducted with 20 VAD recipients (implanted as a bridge to transplantation), 11 interviews also included the VAD recipients’ partners. Interpretive phenomenology was employed as the theoretical basis guiding the analysis of the interviews. Results: Four key themes emerged from the data: the existence of VAD communities; experiential knowledge and understanding; social comparisons; and the impacts of deaths within the VAD community. Many of the interviewees valued the VAD communities and the relationships they had formed with fellow recipients. The beneficial impacts of the VAD communities included offering recently implanted patients a realistic view of what to expect from life with a VAD; this could aid them in accepting and adapting to the changes imparted by the device. However, negative impacts of the VAD communities were also reported, in particular following deaths within the group, which were a source of distress for many of the interviewees. Conclusions: In general, the VAD communities appeared to be a beneficial source of support for the majority of interviewees. Consideration should be given to how these communities could be supported by clinicians.


Publication metadata

Author(s): Standing HC, Exley C, MacGowan GA, Rapley T

Publication type: Article

Publication status: Published

Journal: European Journal of Cardiovascular Nursing

Year: 2018

Volume: 17

Issue: 5

Pages: 339-407

Print publication date: 01/06/2018

Online publication date: 19/01/2018

Acceptance date: 22/12/2017

Date deposited: 28/09/2018

ISSN (print): 1474-5151

ISSN (electronic): 1873-1953

Publisher: SAGE Publications Inc.

URL: https://doi.org/10.1177/1474515118754738

DOI: 10.1177/1474515118754738


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