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Lookup NU author(s): Dr Sarah Skyrme,
Professor Simon Woods
This is the authors' accepted manuscript of an article that has been published in its final definitive form by Sage Publications, 2018.
For re-use rights please refer to the publisher's terms and conditions.
Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.
Author(s): Skyrme SL, Woods S
Publication type: Article
Publication status: Published
Print publication date: 01/08/2018
Online publication date: 24/04/2018
Acceptance date: 24/03/2018
Date deposited: 02/05/2018
ISSN (print): 0907-5682
ISSN (electronic): 1461-7013
Publisher: Sage Publications
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