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Lookup NU author(s): Professor Jackie Leach Scully
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Current genetic intervention against disease and disability relies on prenatal genetic testing and the option of termination or on the expensive and demanding process of preimplantation genetic diagnosis. By contrast, gene editing promises to increase reproductive choice through therapeutic and restorative interventions that avoid the ethical issues of abortion or selection. Eventually, gene editing could effectively eradicate disability-linked genetic anomalies from the human genome. If it becomes possible to eradicate genetically influenced disability, would anything be lost, and if so, a loss to whom or to what? This chapter considers the ethics of the control over biology offered by gene editing and the exercise of choice using that control in parental reproductive decisions. The discussion examines empirical data on the views of the UK public that offer an alternative perspective for bioethical thinking about reproductive autonomy, the exercise of choice, and the nature of good parenthood.
Author(s): Scully JL
Editor(s): Parens E; Johnston J
Publication type: Book Chapter
Publication status: Published
Book Title: Human Flourishing in an Age of Gene Editing
Print publication date: 09/10/2019
Acceptance date: 31/01/2018
Publisher: Oxford University Press
Place Published: Oxford
Library holdings: Search Newcastle University Library for this item