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The experience of facilitators and participants of long term condition self-management group programmes: A qualitative synthesis

Lookup NU author(s): Stephen Hughes

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Abstract

Objective: Our aim was to systematically review the qualitative literature about the experiences of both facilitators and participants in a range of group-based programmes to support the self-management of long-term conditions. Methods: We searched 7 databases using the terms ‘self-management’, ‘group’ and ‘qualitative’. Full text articles meeting the inclusion criteria were retrieved for review. A thematic synthesis approach was used to analyse the studies. Results: 2126 articles were identified and 24 were included for review. Group participants valued being with similar others and perceived peer support benefits. Facilitators (HCP and lay) had limited group specific training, were uncertain of purpose and prioritised education and medical conformity over supportive group processes and the promotion of self-management agency and engagement. Overall, studies prioritised positive descriptions. Conclusion: Group programmes’ medical self-management focus may reduce their ability to contribute to patient-valued outcomes. Further research is needed to explore this disconnect.Practice implicationsThis review supports broadening the scope of group-based programmes to foreground shared learning, social support and development of agency. It is of relevance to developers and facilitators of group self-management programmes and their ability to address the burden of long-term conditions.

Publication metadata

Author(s): Hughes S, Lewis S, Willis K, Rogers A, Wyke S, Smith L

Publication type: Article

Publication status: Published

Journal: Patient Education and Counseling

Year: 2017

Volume: 100

Issue: 12

Pages: 2244-2254

Print publication date: 01/12/2017

Online publication date: 01/07/2017

Acceptance date: 26/06/2017

ISSN (print): 0738-3991

ISSN (electronic): 1873-5134

Publisher: Elsevier

URL: https://doi.org/10.1016/j.pec.2017.06.035

DOI: 10.1016/j.pec.2017.06.035

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